Ultragenyx

Volunteer for ornithine transcarbamylase (OTC) deficiency research studies

Ornithine transcarbamylase (OTC) deficiency is a rare, urea cycle genetic disorder characterized by complete or partial lack of the enzyme OTC. The results of OTC studies may help researchers better understand your condition in order to provide improved treatments.

This website is for clinical trial and research recruitment for US residents.

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About clinical trials

Research studies and clinical trials test whether a new potential treatment is safe and effective for patients. In some cases, volunteering for research can be done from the comfort of your home. There are many reasons people choose to participate in research and join clinical trials, including access to treatment and receiving quality care. Consider taking advantage of the opportunity to share your experience with your disease or condition. The decision to join a clinical trial or a research study is always a personal choice, and you can leave a clinical trial at any time, for any reason.