“Precision medicine saved my sister’s life. I want that for everyone. If you’re a patient with lung cancer, no matter where you live, or how much money you have, we are standing by to help you.”
Lung Cancer Patient Advocate
What are the steps?
1. Get tested →
We can help you make sure that you get the right tests for your particular cancer.
2. Find your options →
You can use the results of your tests to make sure you're getting the right treatment or trial for you.
3. Get support
Reach out to the resources and communities standing by to help and support you.
Who are we?
We are a group of respected patient organizations, advocates, startups, and industry leaders - both for-profit and non-profit - devoted to patients getting the best possible care, starting with the knowledge, hope, and action they can take right now.
All of our services are donated, and any funding we receive is used to cover out-of-pocket costs to further the initiative.
We can help you get the right tests
Our team will work with you and your doctors to make sure you receive appropriate tumor testing.
All of our consultation services are free. We’d love to hear from you today.
Precision medicine is the future
The evidence is growing. Detailed information about your tumor can make all the difference in finding the right course of treatment for you. Even if there is no targeted or immunotherapy treatment available for your tumor now, there are many new drugs being developed and tested today that may help you in the future.
What's a biomarker?
Biomarker testing is at the center of personalized medicine. The word "biomarker" refers to any of your body's molecules that can be measured to assess your health.
What is molecular testing?
Molecular testing (also called biomarker testing) looks for biological changes that may be associated with your cancer. In most cases, this involves testing a piece of tissue from the cancer (a BIOPSY) for changes in the DNA or proteins in cancer cells.
How is genomic testing paid for?
Will my insurance company pay for genetic testing? The short answer to this question is yes; most likely your insurance company will provide coverage for genetic testing.
The benefits of molecular profiling in lung cancer
Should I have biomarker tests as part of a lung cancer diagnosis?
We can help you find the right treatment
With next-generation tumor testing, your care team can help you identify the right currently-approved treatment or clinical trial for you.
What new treatments are available today?
Why are clinical trials important?
Find cancer studies that are right for you
Here's one of the many precision medicine trials available in lung cancer today:
A groundbreaking collaborative approach that uses multidrug, targeted screening to match patients with studies of investigational new treatments.
Why clinical trials need cancer patients
I have a very rare and aggressive type of skin cancer — Merkel cell carcinoma — for which there is no approved cure, and I’m participating in a clinical trial to deal with it.
What current treatments are available?
A primer on targeted therapy for lung cancer.
Why now is the time to get involved in lung cancer research
A conversation with Jennifer King, Director of Science and Research at the Lung Cancer Alliance, on why right now we are in a moment of hope for lung cancer.
Who is eligible and how can I learn more about clinical trials?
When should lung cancer patients seek a second opinion?
You’re not alone.
There are thousands of people going through what you’re going through right now, and we hope that sharing their stories gives you inspiration to start connecting with patients and support services through the resources below.
How can I hear from patients who have gone through this?
Patient Power is dedicated to helping cancer patients, survivors and their care partners get the latest information about their condition, leading-edge treatments, and clinical trials. Through live and online meetings, video programs, and social media, Patient Power “empowers” patients to take charge of their own healthcare decisions in partnership with their medical team.
PatientsLikeMe, the world’s largest personalized health network, helps people find new options for treatments, connect with others, and take action to improve their outcomes.
Bonnie J. Addario Lung Cancer Foundation (ALCF)
The ALCF is a patient-founded, patient-focused, and patient-driven organization devoted to eradicating lung cancer. They provide educational programming and resources for patients, as well as individualized support through their Patient Portal program.
Free to Breathe
Free to Breathe is a partnership of lung cancer survivors, advocates, researchers, healthcare professionals, and industry leaders. They fund research, provide educational materials, and support patients and caregivers through a support line and online community.
Lung Cancer Alliance
Through support programs tailored for patients like you, they provide a path to your best treatments which includes access to molecular testing and clinical trial matching and they connect you with other survivors who have walked in your shoes and can give advice and support.
Lung Cancer Foundation of America (LCFA)
LCFA is an organization dedicated to improving survivorship of lung cancer patients through the funding of transformative science. They provide educational resources for patients and raise awareness and funds for research.
Patient Empowerment Foundation (PEF)
The Patient Empowerment Foundation uses online and digital communications to educate and empower patients and family members worldwide who are facing cancer and serious chronic illness.
SURVIVEiT is an organization founded by Matt Ellefson, a seven-time lung cancer survivor. It’s the world’s first and only non-profit cancer care rating resource.
Cancer Care, Inc.
Cancer Care is a national organization that offers support groups, educational programs, and helpful cancer information. They also publish “A Helping Hand: The Resource Guide for People with Cancer,” which highlights programs and organizations serving those with cancer.
Inspire is a collection of online support groups across multiple therapeutic areas. They have several lung cancer groups where patients can share and learn from other patients.
Inspire and American Lung Association Support Group
This is a lung cancer survivors support group and discussion community.
Lung Cancer Registry
This initiative aims to transform lung cancer into a chronically managed disease within 10 years and ultimately to find a cure. Patients are encouraged to participate in their lung cancer registry, so that they can build a knowledge base to enable researchers to identify and understand the complexities of this disease.
National Comprehensive Cancer Network (NCCN)
The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 27 of the world’s leading cancer centers devoted to patient care, research, and education. They provide excellent educational resources for patients.
National Cancer Institute (NCI) Cancer Information Service
The NCI Contact Center (also known as NCI’s Cancer Information Service) is a federally-funded cancer education program that provides accurate, up-to-date, and reliable information on cancer that is easy to understand.