Support Systems: Building Your Multiple Sclerosis (MS) Care Team

Living with multiple sclerosis (MS) can sometimes feel like you’re navigating an unpredictable road—one with unexpected twists, turns, and detours. There’s so much information to absorb, decisions to make, and changes to navigate. At times, it might feel isolating—but here’s the truth: You are not alone in this.

Having a strong support system—a team of people who truly understand and care—can make all the difference. Your MS care team isn’t just about doctors and treatments; it’s about making sure you have the emotional, physical, and practical support to live life on your terms. 

Let’s take a look at the key people who can be in your corner.

Medical Professionals Who Should Be on Your MS Care Team

Your care team is unique to you, but here are some key people who can provide support in different ways:

1. Your Neurologist: The MS Expert

Your neurologist is at the center of your medical care. As your go-to medical expert, they help you understand your MS, manage symptoms, explore treatment options, and track changes over time. If something doesn’t feel right—whether it’s a new symptom or a concern about medication—they’re the first person to call.

Tip: Find a neurologist who listens, explains things in a way you understand, and respects your voice in decision-making.

2. MS Care Coordinator: The Connectors

MS care coordinators can be invaluable. They work with your entire care team to develop and implement individualized care plans, help answer questions between doctor visits, and connect you with other resources. Think of them as a bridge between you and the rest of your healthcare team.

3. Physical and Occupational Therapists: Helping You Stay Strong

MS can sometimes make everyday tasks more challenging. Physical therapists help improve strength, balance, and mobility, while occupational therapists find ways to make daily activities easier—whether it's adapting your home or suggesting tools to reduce fatigue.

4. Your Primary Care Doctor: The Big-Picture Thinker

Your MS is just one part of your health. A primary care doctor helps with everything else—routine checkups, blood pressure, illnesses, and more. They ensure that all aspects of your well-being are taken into account.

5. Mental Health Professionals: Because MS Affects More Than Your Body

MS doesn’t just affect the body—it can take a toll on your emotions, too. A counselor, therapist, or psychologist can help you cope with anxiety, depression, or the emotional challenges of living with a chronic disease. Seeking mental health support is a sign of strength, not weakness.

6. Nutritionists and Wellness Experts: Fueling Your Body Right

A well-balanced diet can help with energy levels, inflammation, and overall health. A nutritionist who understands MS can guide you toward foods that nourish your body and help manage symptoms.

Other Ways to Find Support

1. Family and Friends: Your Everyday Support System

Medical professionals play a key role, but so do the people in your daily life. Lean on family and friends who listen, offer encouragement, or share a laugh on tough days. Let them know how they can best support you—whether it's a ride to appointments, helping with chores, or just a night of fun when you need a break.

2. MS Support Groups: Finding Community

There’s something powerful about connecting with others who just get it. Online and in-person MS support groups offer a space to share experiences, swap tips, and remind each other that none of us are alone in this.

3. Complementary Therapies: Exploring Additional Support

Some people with MS find relief through complementary therapies like acupuncture, massage, yoga, or meditation. While these aren’t replacements for medical care or treatments, they can be helpful additions to your wellness routine.

Building a Team That Works for You

Every MS journey is different, so your support system should reflect your unique needs. Here are some tips to build a team that truly supports you:

• Trust your instincts – If a doctor, therapist, or support person doesn’t feel like the right fit, it’s okay to look for someone else. You deserve a team that listens and respects your choices.
• Communicate openly – Share your concerns, ask questions, and let your team know what’s working (or not working) for you.
• Embrace both medical and emotional support – MS is as much an emotional journey as a physical one. Prioritizing mental health is just as important as managing physical symptoms.
• Lean on your people – Don’t be afraid to ask for help when you need it. The people who care about you want to support you.

You are Strong, and Your Are Not Alone

MS may change the way you navigate life, but with the right care team, you’ll never have to navigate it alone. Whether it’s your doctor, a therapist, a close friend, or a support group—your team is out there, ready to walk this path with you.

Take a deep breath. You’ve got this. And you’ve got them.