Let's talk medical research

Nina Beaty is an artist and an art therapist. In 2014, a diagnosis of small-cell lung cancer (SCLC) with a short life expectancy turned her life upside down. When her cancer didn't respond to standard treatment, she enrolled in an immunotherapy trial. Four years out, Nina has no evidence of cancer.

The National Infusion Center Association (NICA) is an Austin-based advocacy organization dedicated to improving patient access to in-office infusions. We caught up with Brian Nyquist, NICA’s Executive Director, to talk about the work they’re doing to achieve this goal, and why research studies remain critical to providing optimal patient care.

A nonprofit blog can increase site traffic, grow an email list, and expand cause awareness. However, with most nonprofit teams strapped for time, it can be challenging to get blogging right. We talked with nonprofit blogging experts for advice on brainstorming, structuring, and sharing to make the most of every blog post you write. Follow these tips to use your blogging time wisely for the most ...

Electronic patient-reported outcomes (ePRO) in a clinical trial allow patients to answer questions and report on their health through an electronic device, such as a smartphone or tablet.

With most nonprofit teams strapped for time, it can be challenging to prioritize blogging and content creation. But when organizations start a blog and write consistently, it makes a big difference in site traffic and email list growth, not to mention awareness around the nonprofit's work and goals.

In the busy and resource-constrained nonprofit industry, keeping blog content fresh may be easy to put on the back burner. However, blogging is a great way to engage an audience, showcase the organization’s accomplishments, build a trusting relationship with the community, gain free publicity, and drive traffic to a website.

When managing a clinical trial, there are many moving parts to keep track of, from patient enrollment and randomization to drug supply ordering. Study coordinators use Interactive Voice Response Systems (IVRS) or Interactive Web Response Systems (IWRS) to enter patient information, blind patient information, randomize patients, and keep drug supplies organized for the trial.

Maintaining a nonprofit blog can help you bring more visitors to your site, engage your community, and amplify your message. But if your organization is like most nonprofits, your team is always strapped for time. A content calendar can help you stay organized and on track with creating regular blog posts for your website.

Electronic patient-reported outcomes (ePRO) in clinical trials are an effective way to gather data and include the patient voice in your trial while reducing the burden of entering data from paper forms. In a clinical trial that uses ePRO, a vendor can either provide an electronic device for the study, a site can buy devices and download an ePRO app, or patients can use their own devices.

In my role at Antidote, I talk to advocacy groups and patient organizations every day, so I have a good sense of patient involvement in the drug development process. But, while I speak to organizations about how they’d like to help accelerate research and provide patients with access to clinical trials, I don’t often hear from patients themselves about how they view their role in the larger ...