Let's talk medical research

Glycogen storage disease (GSD) is a rare genetic condition in which the body is not able to store or break down glycogen (a complex sugar) properly. GSDs can have different forms and subtypes, and by some accounts, there are more than 13 different types of GSD. Below, we break down the key differences between a few of the most common types of GSD.

The golden rule of clinical trial recruitment is that your materials should be “patient-centric.” This buzzword can mean a lot of different things, but to us, it’s all about letting the patient voice drive how we think about the entire clinical trial process. Need tips on how to talk to patients about your study? Below, we share three strategies you can use to make your clinical trial recruitment ...

Clinical trial matching software is one of the newer developments in the research space. Typically, sponsors work directly with clinical trial matching software companies to find solutions for their research portfolios. This technology matches patients with clinical trials in a process that’s simple both for patients and sponsors, and can help drive patient recruitment as well. We outline how ...

Wilson disease is a rare genetic disorder that causes an excess of copper to accumulate in your liver, brain, and other vital organs. While it’s normal for your body to need a small amount of copper to keep you healthy, a surplus of copper can be harmful. Wilson disease is usually treatable with lifelong therapies, but without treatment, it can lead to high copper levels and potentially fatal ...

One of the most critical steps in the clinical trial process is patient recruitment. Statistics show that approximately 80% of clinical trials are delayed or closed because of problems with recruitment. But without the right recruitment tools and strategies, clinical trial teams can’t find the volunteers that they need, ultimately slowing timelines. We outline three strategies to streamline your ...

COPD, also known as chronic obstructive pulmonary disease, is a condition that makes it hard to breathe and can worsen over time. Catching COPD early can help you better manage the disease, but symptoms can be mild, and you may even mistake them for a common cold. So, what are the early warning signs of COPD?

This is a reprint of an article originally published in the INvisible Project’s 5th edition of their Migraine and Headaches magazine, written by Antidote’s Head of Partnerships and Patient Advocacy, Lindsey Wahlstrom-Edwards.

Stacey Kennedy-Conner was 15 years old when she was diagnosed with lupus. Through mentors at her high school, she was connected to lupus advocacy groups at a young age, and was introduced to the importance of building a sturdy support network. She has had lupus for almost 18 years now. She lives in Chicago, Illinois with her husband, professionally works in the school system supporting families ...

Postoperative Corneal Induced Chronic Pain (also known as CICP) is a condition that causes chronic pain and blurred vision after eye surgery. For the 300,000 people who experience this, effective treatments could drastically improve their quality of life.

Tina Aswani Omprakash, a Crohn’s disease patient and advocate, helps empower the chronically ill and disabled. In fact, her site, “Own Your Crohn’s,” features her own experiences as well as the stories of IBD patients from around the world. We were lucky to have the opportunity to speak with Tina, where she told us about her Crohn’s disease diagnosis, how cultural stigma impacted her journey with ...