Amanda McDowell

And on Mondays they dance: Love in the face of Alzheimer's

It all started with a phone call. Sandy, in tears, called Ira, her husband of over 30 years. She told him that she couldn’t find the Pilates studio where she practiced for years. It was a trip she had taken from their apartment in New York City countless times. The following week, they made an appointment with a neurologist. Soon after, Sandy would be given a diagnosis of mild cognitive ...

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The search for an Alzheimer’s turning point: Powerful lessons in a new documentary about a failed Alzheimer's trial

With a long line of disappointments in failed clinical trials, the last few years have not been good ones for drug development in Alzheimer’s disease. TURNING POINT is a documentary, produced in conjunction with BrightFocus Foundation, that follows the journey of researchers and patients working together on a trial for a new Alzheimer’s drug. The drug solanezumab, investigated by Eli Lilly & ...

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What it's like to participate in clinical trials for cystic fibrosis

Though clinical research is a requirement for any new drug or treatment to be developed, many people are unaware of what participating in one of these studies entails. Emily Schaller, founder and CEO of the Rock CF Foundation, talked with Antidote about her experience participating in several clinical trials for cystic fibrosis, a progressive lung condition that she has lived with since she was ...

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Patient stories are part of the standard of care at a National Cancer Hospital System

Cancer Treatment Centers of America (CTCA) is a four-hospital system with a national footprint. As a specialty provider in cancer care, the system sees 20,000 cancer patients annually and consistently ranks in the top 3% of all hospitals regarding patient satisfaction. In addition, the organization has worked to harness the therapeutic benefits of patient storytelling through a partnership with ...

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A brush of inspiration: A talk with patient advocate Regina Holliday

The hall was full of people clad in conference attire: black suits, white shirts, and, for some, an adventurous pop of color in a shoe or a tie. As the speakers presented the latest data from their research, my eyes drifted to my fellow conference attendees, seeking something — anything — to help my jet-lagged mind stay focused and alert.

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Well Illustrated: Patients finding their voice through art

Nina Beaty is an artist and an art therapist. In 2014, a diagnosis of small-cell lung cancer (SCLC) with a short life expectancy turned her life upside down. When her cancer didn't respond to standard treatment, she enrolled in an immunotherapy trial. Four years out, Nina has no evidence of cancer.

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A conversation with NICA’s Executive Director on in-office infusions and the importance of research studies

The National Infusion Center Association (NICA) is an Austin-based advocacy organization dedicated to improving patient access to in-office infusions. We caught up with Brian Nyquist, NICA’s Executive Director, to talk about the work they’re doing to achieve this goal, and why research studies remain critical to providing optimal patient care.

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7 nonprofit blog best practices

A nonprofit blog can increase site traffic, grow an email list, and expand cause awareness. However, with most nonprofit teams strapped for time, it can be challenging to get blogging right. We talked with nonprofit blogging experts for advice on brainstorming, structuring, and sharing to make the most of every blog post you write. Follow these tips to use your blogging time wisely for the most ...

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How to get the most from nonprofit blogs: Advice from the Storytelling Nonprofit

With most nonprofit teams strapped for time, it can be challenging to prioritize blogging and content creation. But when organizations start a blog and write consistently, it makes a big difference in site traffic and email list growth, not to mention awareness around the nonprofit's work and goals.

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Nonprofit blogs: How to increase your traffic

In the busy and resource-constrained nonprofit industry, keeping blog content fresh may be easy to put on the back burner. However, blogging is a great way to engage an audience, showcase the organization’s accomplishments, build a trusting relationship with the community, gain free publicity, and drive traffic to a website.

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